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Transforming Care

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Transforming care for people with learning disabilities is a national programme to improve services for people with learning disabilities and/or autism, who display behaviour that challenges, including those with a mental health condition. This will drive system-wide change and enable more people to live in the community, with the right support, and close to home.

Led jointly by NHS England, the Association of Adult Social Services (ADASS), the Care Quality Commission (CQC), Local Government Association (LGA), Health Education England (HEE) and the Department of Health (DH), the Transforming Care programme focuses on the five key areas of:

  • Empowering individuals
  • Right care, right place
  • Workforce
  • Regulation
  • Data.

The national plan, Building the Right Support, that has been developed jointly by NHS England, the LGA and ADASS, is the next key milestone in the cross-system Transforming Care programme, and includes 48 Transforming Care Partnerships across England to re-shape local services, to meet individual’s needs. This is supported by a new Service Model for commissioners across health and care that defines what good services should look like.

The plan builds on other transforming care work to strengthen individuals’ rights; roll out care and treatment reviews across England, to reduce unnecessary hospital admissions and lengthy hospital stays; and test a new competency framework for staff, to ensure we have the right skills in the right place.

The Transforming Care programme is focusing on addressing long-standing issues to ensure sustainable change that will see:

  • More choice for people and their families, and more say in their care
  • Providing more care in the community, with personalised support provided by multi-disciplinary health and care teams
  • More innovative services to give people a range of care options, with personal budgets, so that care meets individuals’ needs
  • Providing early more intensive support for those who need it, so that people can stay in the community, close to home
  • But for those that do need in-patient care, ensuring it is only for as long as they need it.

For more information please see the following links:

Learning Disability Mortality Review Programme

NHS Clinical Commissioning Groups in Birmingham are part of the national Learning Disability Mortality Review Programme (LeDeR), commissioned by the Health Quality Improvement Partnership on behalf of NHS England and is led by Bristol University.

The LeDeR programme was established as a result of one of the key recommendations of the Confidential Inquiry into Premature Deaths of People with a Learning Disability (CIPOLD – 2003).

The programme aims to help health and social care professionals and policy makers to:

  • Identify the potentially avoidable contributory factors related to deaths of people with learning disabilities;
  • Identify variation and best practice in preventing premature mortality of people with learning disabilities; and
  • Develop action plans to make any necessary changes to health and social care service delivery for people with learning disabilities.

The programme will collate and share anonymised information so that common themes, learning points and recommendations can be identified and taken forward into policy and practice improvements.

From 1st October 2017 all deaths of people (aged 4 and above) with a learning disability who were registered with a Birmingham GP will be reviewed. 

To report a death of a person with a learning disability to the National Mortality Review team you can use this confidential online notification form or telephone: 0300 777 4774 (confidential line available Monday to Friday, 9am to 4.30pm).  You do not need anyone else’s permission to report the death.  Anyone can report a death of a person with a learning disability, including family members, friends, Local Authority and NHS Staff.

Reviews in Birmingham are being co-ordinated by Michelle Dunne, who is the local area contact for the programme.  If you wish to contact Michelle regarding the LeDeR programme, email: This email address is being protected from spambots. You need JavaScript enabled to view it.

This programme is being overseen by a Steering Group, your local representative is Michelle Dunne and can be contacted on This email address is being protected from spambots. You need JavaScript enabled to view it.  if you want to know more about this work at a local level.

Further information on the programme is available below:

University of Bristol (LeDeR) website:

Easy Read leaflet on the programme available by clicking here

View the easy read flyer on the programme here.

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